International Travel Preparation for People With MS

Planning an international trip can bring on a rush of emotions: excitement, anticipation, and overall happiness. However, when you have Multiple Sclerosis (MS), it can also bring fear, anxiety, pressure, and uncertainty. Questions about accessibility, communication, and health management often arise. 

My name is Dawn, and I was diagnosed with MS in 2000. For many years, traveling was never a focus for me because most of my flights were less than five hours. After my diagnosis, international travel seemed unattainable due to my limitations. A short time ago, my son and I were having a conversation about a trip for his birthday. He chose Japan, and I gasped. I thought there was no way I could travel that far, so I offered another location. We had several discussions, and I finally said, “Okay, I believe that I will be able to travel that far, but it will require tremendous research and planning.” 

With a lot of fearful thoughts swirling, I dove in and began my travel plans to Tokyo. I never thought I would be able to travel that far at all. It turns out that with excellent planning and preparation, my trip to Tokyo, Japan, was amazing.  

Essential Tips to Managing the Complexities of Traveling with MS

Consult Your Healthcare Provider 

Before booking your trip, schedule an appointment with your healthcare provider. Discuss your travel plans, obtain necessary vaccinations, and ensure you have an adequate supply of medications. Request a letter detailing your condition, medications, and any special needs, which can be crucial in case of medical emergencies or security checks. 

Plan Your Itinerary Wisely 

Choose destinations and activities that match your energy levels and physical abilities. Factor in rest periods and avoid overly strenuous activities. Research the accessibility of accommodations, transportation, and tourist sites to ensure they meet your needs. Always remember this trip is planned for you to enjoy so make sure you are realistic in all that you can manage to do each day.  If you miss a museum don’t be hard on yourself. 

Flight Management 

When searching for my flight, I made sure to select a flight pattern that would be the easiest for me to manage. I prioritized direct flights to avoid multiple stops. We did have one stop, but it included a comfortable layover. I ensured that the layover was sufficient and easy for me to get to the next gate. This provided the time to recover in the lounge, eat, and rest before the next leg, which was quite long. 

Additionally, inform the airline that you are a disabled person traveling and will need accommodations. If you require a special meal, let them know this as well. The flight attendants knew that I might need assistance and made frequent stops to check in with me. I would also recommend getting up to stretch every two hours. The flight crew will completely understand if you provide them with this information. Remember, in this case, oversharing will help you. 

Medication Management 

Carry enough medication to last your entire trip, plus a few extra days’ worth in case of delays. Keep medications in their original packaging with clear labels and pack them in your carry-on luggage. It’s also helpful to carry a list of your medications, including generic names, in case you need to replace them. A note from your doctor can be useful if you encounter issues at customs. Keep in mind that each country has different rules and regulations with prescription medications. Don’t assume the pharmacy will carry your exact medication. 

Prepare for Temperature Changes 

Extreme temperatures can exacerbate MS symptoms. Plan your travel wardrobe to accommodate changes in weather and consider destinations with a climate that suits your condition. Cooling vests and other temperature-regulating clothing can be beneficial in hot climates. Traveling during a season suitable for your preferences, such as cooler weather if you are sensitive to heat, can make a significant difference. In my case, I researched months that were cooler and made my decision accordingly. 

Accessibility Considerations 

Ensure your accommodation is accessible by checking hotel websites and calling ahead to discuss your needs. If using Airbnb, communicate clearly with hosts about accessibility features like bathroom grab bars and elevator access. Research the accessibility of public transportation and book special assistance services at airports in advance. 

Insurance and Documentation 

Purchase comprehensive travel insurance that covers pre-existing conditions and medical evacuation. Carry important documents, including your passport, visa, travel insurance policy, and medical information. Keep both digital and hard copies. 

Manage Fatigue 

Fatigue is a common MS symptom, so pace yourself. Plan for rest days and use mobility aids like wheelchairs or scooters if necessary. Research mobility device rentals at your destination to save time. Listen to your body and don’t hesitate to skip activities if needed. 

Hydration and Nutrition 

Stay hydrated and maintain a balanced diet to manage your symptoms effectively. Research local cuisine to ensure you can find suitable food options and consider bringing non-perishable snacks. I have been a vegan for twenty years so it was important for me to locate places that would accommodate my dietary needs.  This certainly saved us time once we arrived in Japan. 

Emergency Preparedness 

Know the location of the nearest medical facilities and how to contact them. Learn key phrases in the local language related to your condition and medical needs. Carry a card with emergency contact information and details about your MS. Identifying hospitals or MS centers at your destination can provide peace of mind. 

Stay Connected  

Keep in touch with family or friends who are aware of your condition and travel plans. Regular check-ins can provide peace of mind and assistance if needed. Share your itinerary in detail with close friends and family to ensure help is available if required. 

The Effort Is Worth It

Traveling with Multiple Sclerosis requires additional effort, but with thorough preparation and the right mindset, you can enjoy a fulfilling and adventurous journey. Prioritize your health and comfort, and don’t hesitate to seek assistance to make your trip as enjoyable and stress-free as possible.  

Get ready – your international travel awaits! Happy travels, everyone.