Authors
Summer Martini , Patient Advocate , Theresa D. , Can Do MS Participant & Wendy L. , Can Do MS Participant
Adaptation Tips From The Can Do Community
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13 Mar 2025 | ~04:57 Engagement Time
Multiple sclerosis (MS) can be an isolating experience, not just because of its physical symptoms, but because so many of its challenges are invisible. Mood changes, cognitive shifts, and bowel or bladder challenges can be as disruptive as mobility issues, yet they often go unseen by those around us. Without outward signs of struggle, it’s easy to feel alone in the daily work of adapting to a body that doesn’t function the way it once did. But adaptation isn’t just about loss; it’s about shifting, reimagining, and finding new ways to engage with life. Connecting with others who understand your experience—whether through an MS support group near you or online programs—can be a powerful way to navigate these changes with greater ease.
Adapting to MS doesn’t mean releasing the life you love; it means reshaping it. When we shift our perspective from focusing on what’s been lost to exploring what’s still possible, we reclaim a sense of agency. Every person’s MS journey is different, but one common thread is the need to find new ways to participate fully in the world. While that journey can feel overwhelming, it becomes lighter in the company of others who have walked a similar path. Finding an MS support group or simply hearing the stories of others who have made these shifts can provide not only practical insights and tips, but also a sense of hope.
The following stories highlight people who have adapted their lives in meaningful ways, continuing to pursue rich and fulfilling paths despite—and sometimes because of—their MS. Their experiences demonstrate that while change is inevitable, it doesn’t have to mean the end of vitality, purpose, or joy. Summer shared her process of how she adapted to the idea that her favorite activity might have to look different than it did in the past.
When I was diagnosed with primary progressive Multiple Sclerosis, one of the first things that crossed my mind was, “how will I walk with my dog?” I knew I wasn’t ready to let go of one of the activities that I loved so much. I needed to delve deep into understanding the specific physical limitations my disability now presented. My goal was to modify my activities by using assistive devices, adjusting the environment, or changing the intensity level. But where to start?
Lots of questions were asked of my fellow MSers from my support group, my PT, OT, and my entire treatment team. After a few tumbles, it became evident that safety must come first, and having the right mobility device to reinforce me would minimize the risk of injury.
I gradually progressed: Starting easy, and building up difficulty as my abilities and neuroplasticity would allow. I found myself doing a daily inventory of my symptoms, to find the right assistive device to match. The process was somewhat exciting! After trial and tribulation, finding the solution was so satisfying! I find that having a positive attitude goes a long way here. I try to embrace the challenge and focus on finding new ways to do the old things I’ve always loved.
Adapting to physical changes with MS can feel like an ongoing negotiation with your own body. Movements that once felt effortless may now require careful planning, and fatigue can make the rhythm of daily life feel foreign or exhausting. But within these shifts, there is also an opportunity—to find new ways of moving, resting, and experiencing joy. Wendy shares how she adapted to physical changes while finding ways to continue her beloved gardening practice.
One of my favorite hobbies is growing and picking fresh vegetables from my garden. But when an MS attack hammered me, I didn’t think that was going to be possible again. Being on my own with mobility issues, I was no longer able to manage the giant garden I enjoyed with my late husband (we actually had 50 tomato plants one year!).
I was overjoyed to discover gardening in planter boxes and large pots, which raises the plants to the right level for watering and soil access without risk of falling. I now look forward to planning my garden in anticipation of fresh heirloom tomatoes, lemon cucumbers, eggplant, zucchini, herbs, purple string beans and more. The hardest part is knowing it is a small space so I can’t buy every plant from the garden center!
Adapting to life with MS is a personal journey, but it doesn’t have to be lonely. Hearing the stories of others who have found new ways to move, think, and live with MS can be a powerful reminder that change isn’t just about loss—it’s about possibility. Each person’s path is different, but through connection and shared experience, we lighten the load for one another. Theresa D. writes about the power of community – and family – in her process to adapting with MS.
I realized COVID had a huge impact on everyone and everything, and I was not in a good place at all. I lost my purpose and sense of self! This social butterfly retreated back into her cocoon. I don’t recall how I connected with Can Do MS, but I’m so thankful that I did. With a leap of faith, I eventually joined all the Can Do MS virtual programs. I now have a Zoom family that I meet with outside of programs! I’ve learned so much more about myself, and am living a much better life with MS than ever before. The Can Do MS programs helped me with depression, anxiety, stress, coping styles, resilience, & self-efficacy. My MS Toolbox outgrew itself and I now have a huge upright MS Tool Chest!
If you’re looking for support, guidance, or simply a place to share your own story, Can Do MS offers free, expert-led MS programs where you can connect with others who truly understand. Find strength in community and discover new ways to adapt with confidence. Learn more and join a program today.
