Proactive and Positive MS Survival Guide

Introduction

Upon receiving the diagnosis of multiple sclerosis (MS), the comforting assurance from my doctor that we would face it together, and the promise of growing old with this condition, lifted me from the depths of despair and uncertainty. These words transformed my initial fight-or-flight response into a state of acceptance, grounding me in the present moment. However, it took more than a decade to come to terms with the presence of MS in my life.  

When confronted with a life-altering diagnosis, one has a choice: succumb to despair or unearth the inner strength to confront the challenges ahead. Reflecting on what aspect of myself I hold most dear, resilience consistently surfaces. While I had the unwavering support of loved ones, I lacked a plan for navigating life with MS. Embracing a proactive mindset over a reactive one became integral to enhancing my daily quality of life. 

Living with multiple sclerosis presents unique challenges, but it doesn’t define who you are or limit what you can achieve. When facing challenges that MS may bring it is important to pack your survivor bag and put on your “yes you can” hat.  With the right mindset, support system, and strategies in place, you can navigate life with MS with resilience and positivity. Here’s your proactive and positive survival guide to thriving with MS: 

Listen To Your Body 

• Prioritize Self-Care: Make self-care a non-negotiable priority. Practice relaxation techniques, engage in activities you enjoy, and prioritize restorative sleep to recharge both your body and mind. 
• Stay Active: Exercise is key to managing MS symptoms and promoting overall well-being. Find activities that you love and make them a regular part of your routine. Whether it’s yoga, swimming, or simply going for a walk, staying active can boost your mood and energy levels.  

• Listen to Your Body: Pay attention to your body’s signals and adjust your activities accordingly. Pace yourself, take breaks when needed, and don’t hesitate to ask for help when necessary. 

Practice Mindfulness

• Embrace Positivity: Your mindset matters. Focus on your abilities rather than what appears impossible. Cultivate a positive attitude and believe in your ability to overcome obstacles. 

• Practice Gratitude: Cultivate a mindset of gratitude. Focus on the things you’re thankful for each day, no matter how small. Gratitude can shift your perspective and help you find joy in the midst of challenges. 

Maintain Fulfilling Relationships

• Build a Support Network: Surround yourself with a team of supportive friends, family, healthcare professionals, and fellow MS warriors. Lean on them for encouragement, understanding, and assistance when needed.  

• Stay Connected: Stay connected to the world around you. Engage in social activities, pursue hobbies and interests, and maintain meaningful relationships. Connection and community can provide a sense of belonging and support. 

Empower Yourself

• Educate Yourself: Knowledge is empowering. Take the time to learn about MS, its symptoms, treatments, and management strategies. Being informed allows you to advocate for yourself and make informed decisions about your health. 

• Be Flexible: Living with MS requires adaptability. Be open to trying new approaches, therapies, and lifestyle modifications. What works for one person may not work for another, so be willing to experiment and find what works best for you. 

• Never Give Up: Above all, never lose hope. MS may present challenges, but it doesn’t define your future. Keep pushing forward, stay resilient, and remember that you are capable of living a fulfilling and meaningful life despite MS. 

You CAN Do This

Living with MS is a journey, and while it may have its ups and downs, it’s also filled with moments of joy, growth, and resilience. Embrace each day with positivity, surround yourself with support, and remember that you are not alone on this journey. With determination, optimism, and a zest for life, you can thrive with MS and continue to live life to the fullest.